I just read an article in backbebetter http://backbebetter.blogspot.com/ by Jay Gould about his experiences in the "My back hurts" protracted crisis. Many of our pages are littered with the same story. To escape escalating pain we jump to be cut by surgeon who offer relief. We all experience this. Too true , Dave, to be good. I don't mean the story, which is good, I mean our outcomes from surgery, which are often a disaster.
I hate the pain scale, check out Gimpy Mumpy, "The Geek is Strong on This One" http://mumpy.typepad.com/gimpy_mumpy/ who has as good an idea as anyone on how to change the current pain scale, to a new one based on rolls of the dice. I'm all for it Gimpy!
Recently, chronicbabe http://www.chronicbabe.com/, was good enough to cull from her emails some of our experiences with well meaning folk who stick their well meaning feet in their mouths. Read her "Naysayer's Smackdown" of July 26, 2006.
These 3 sites are among my favorites.
Folks, imagine this, which happened to me last week. I went to yet another surgeon and after telling him what other surgical Md's had recommended, he responded, "I can't make you any promises...but if you decide to do any of those things, you'll be in a wheelchair. I hate to tell you this, and don't pay me if you don't want to, but your life is now one of pain management. Not me, or any other surgeon can help you now."
Hear! Hear! The honest Doc, who isn't rolling dice with my health to prove some wacky idea. The bloggers I've mentioned in this article, are great. I do want to mention one more. Disability Studies, Temple U. http://disstud.blogspot.com/ is a team effort headed up by Mike Dorn (PhD.) who is a great guy and runs a top shelf, professional website that is kind of like the New York Times of Disabled people, events and news. God bless, Colin
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