I should have mentioned it earlier...COFWA, Circle of Friends with Arachnoiditis, was the first stop for me on the web when I was diagnosed. The people are friendly, welcoming, and helpful
The site has many helpful links. I can't recall any of my posts ever being unanswered. In fact, responses to my comments or questions posted on the site usually generated about 10 responses--sometimes many more.
Your healthcare providers, family and friends will also find the range of posted information, from medical/technical to personal/anechdotal to be vast.
The url: http://health.groups.yahoo.com/group/cofwa/.
I joined and have never been bothered by useless spam. I highly recommend that you check it out, and if you like it, don't worry about joining.
Comments